MedGenome joins ORDI’s Annual Flagship Initiative "Racefor7"
With this initiative, MedGenome reinforces its commitment towards early and accurate diagnosis and treatment of rare diseases
This Rare Disease Day, MedGenome, India’s leading genomics-driven diagnostics and research services company, has announced the next phase of its #CarefortheRare campaign through a collaboration with the Organisation for Rare Diseases India (ORDI), to raise awareness for rare diseases and highlight the importance of early diagnosis, access to advanced testing, and timely care in managing these diseases.
Today, advances in genomic testing have transformed rare disease management. However, a large proportion of patients in India continue to experience years of uncertainty before a confirmed diagnosis. In its second phase of the #CarefortheRare campaign, which was launched last year, MedGenome aims to focus on bridging this diagnostic odyssey and bringing hope to millions of rare disease patients and their families.
ORDI has played a pivotal role in advocating for rare disease patients across India by bringing together all the stakeholders, including patient groups, diagnostic and pharmaceutical companies, clinicians, and policymakers, to recognize and address challenges faced by patients. The Racefor7 Marathon represents the unified voice of the rare disease community, and support for this cause by the community at large strengthens their voice in elevating awareness across the country.
As part of this collaboration, MedGenome will have a team of experts on site to answer questions and provide counselling for those who wish to seek guidance. Employees will also join the run in solidarity with rare disease patients and their caregivers.
Prasanna Shirol, Co-founder and Board Director, ORDI, “There is an urgent need for deeper awareness, stronger policy implementation, and sustainable funding support for rare disease patients in India. Racefor7 has played a meaningful role in bringing together key stakeholders who have the power to create real, lasting change. We are encouraged by the growing momentum and hope to see the country come together for the rare disease community in even greater numbers this year, reaffirming that they are seen, heard, and not alone.
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